 The following links will provide more information about HD and access
to overseas Huntington Disease organisations.
For links to Australian
organisations, please view the
contact page.
HUNTINGTON'S AUSTRALIA - THE NATIONAL HUNTINGTON'S DISEASE ASSOCIATION
http://www.huntingtonsaustralia.asn.au/
This new website provides a web presence for the Australian Huntintgtin's Disease Association (National)
and acts as a portal to the websites of the state associations.
ASSOCIATIONS OUTSIDE AUSTRALIA
International: http://www.huntington-assoc.com
United States of America: http://www.hdsa.org
United Kingdom: http://www.hda.org.uk
New Zealand: http://www.huntingtons.org.nz
ABOUT HUNTINGTONS DISEASE - GENERAL INFORMATION
These links may be useful for those seeking more general information on HD:
http://www.ninds.nih.gov/disorders/huntington/huntington.htm
http://yourgenesyourhealth.org/ygyh/mason/ygyh.html?section=whatisit&syndrome=hd&video=0
FOR PEOPLE LIVING WITH HD
Fact Sheets on range of topics including many aspects of care, children and HD, driving, swallowing and diet, living with risk and planning for the future:
http://www.ahda.asn.au/content/factsheet/index.asp
Behavioural issues & HD
http://www.kumc.edu/hospital/huntingtons/behavior.html
About Tube feeding
http://www.kumc.edu/hospital/huntingtons/tube.html
Better Health Channel for quality information on health & lifestyle http://www.betterhealth.vic.gov.au/bhcv2/bhcsite.nsf?open
FOR CARERS
These links may be useful for Carers.
http://www.lib.uchicago.edu/~rd13/hd/steps.html
http://www.carersvic.org.au
http://www.ahda.asn.au/content/factsheet/index.asp
http://www.centrelink.gov.au/internet/internet.nsf/individuals/carer_index.htm
GENETICS & HD
Understanding genetics
This is fabulous animated primer on the basics of DNA genes and inheritance
http://www.dnaftb.org/dnaftb/
Clinical genetics of HD explained:
http://www.kumc.edu/hospital/huntingtons/genetics.html
Autosomal dominance explained
Genetic counselling and diagnostic services
http://www.genetichealthvic.net.au/indexflash.html
International guidelines for predictive testing
http://www.huntington-assoc.com/guidel.htm
http://www.hdfoundation.org/testread/testwfn.htm
Assisted reproduction technologies
Monash Institute of Reproduction and Development in conjunction with Monash IVF Program, provide assisted reproductive technologies including embryo biopsy and pre-implantation genetic diagnosis (PGD) to assess genetic abnormalities in patients' embryos.
http://www.monashivf.edu.au/services/index.html
HD RESEARCH
These sites may be useful starting points for current research
http://www.huntingtonproject.org/
The Huntington Study Group is a non-profit group of physicians and other health care providers from medical centres in the United States, Canada, Europe and Australia, experienced in the care of Huntington's patients and dedicated to clinical research of Huntington's disease.
http://huntington-study-group.org/
The Huntington Study Group is a non-profit group of physicians and other health care providers from medical centres in the United States , Canada , Europe and Australia , experienced in the care of Huntington 's patients and dedicated to clinical research of Huntington's disease.
http://www.ninds.nih.gov/disorders/huntington/detail_huntington.htm
http://www.hdfoundation.org/index.html
http://www.hda.org.uk/research/rs025.html
INFORMATION - GENERAL
These links that may be useful:
Biology of the brain
http://suhep.phy.syr.edu/courses/modules/MM/brain/blocks/blocks.html
The whole brain Atlas
http://www.med.harvard.edu/AANLIB/home.html
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